[WWW - 2023.07.31]

Information Asset Detail

Queensland Cancer Register (QCR) Data Collection
Identifying and Definitional Attributes
QH 020002 v3
Information Asset
Data Collection
Draft
07-Jul-2021
Standard
Information Management Strategic Governance Committee (IMSGC), Queensland Health
01-Jul-2021
Collection of statewide cancer incidence and mortality information.
QCR Data Collection
Strategic Alignment Attributes
Yes
Cancer notification is mandated in the Public Health Act 2005. All persons diagnosed with cancer in Queensland must be notified to the Queensland Cancer Register (QCR).
Yes
Without the QCR, Queensland Health would not be able to monitor trends in cancer incidence and mortality and subsequently plan and appropriately distribute resources to support and improve state-wide cancer services.

Queensland Health would not be able to fulfil national reporting requirements or contribute to the National Cancer Statistics Clearing house activities.
Yes
Collection of statewide cancer incidence and mortality information allows for appropriate, data driven decision making for Queenslanders. Data from the register assists in enterprise-wide planning, monitoring and evaluating of the quality of treatment and outcomes for cancer patients.
Yes
The QCR is used to fulfil state and national cancer reporting requirements.

QCR functions in accordance with all relevant privacy, confidentiality and security process to maintain patient information.
Yes
QCR data can be used for:
- Research.
- Planning and assessment of cancer treatment and prevention services.
- Monitoring incidence and survival trends for cancer.
- Develop programs to educate our community on the risks of cancer.
Yes
Collection and Usage Attributes
The register collects information about new cases of cancer and provides statistics including incidence, prevalence, survival and mortality. QCR is one of the largest population-based cancer registries in Australia and a unique data resource, dating back to 1982. Together with other State and Territory data, QCR data is used to compile national statistics on cancer incidence and mortality. The data is used to help support key activities such as health service planning and cancer research.
The QCR is a population-based register which includes all Queenslanders diagnosed with cancer.
Queensland
Demographic and geographic details, cancer site, cancer morphology, date and cause of death.
State-wide register, managed by Cancer Alliance Queensland, Metro South Hospital and Health Service.
See publications on website https://cancerallianceqld.health.qld.gov.au
Continuous
PROTECTED
Additional data available on computer media.
Contact Cancer Alliance Queensland.
Contact Cancer Alliance Queensland.
The PH Act requires pathology laboratories, hospitals and nursing homes to notify the QCR about the incidence and mortality of cancer.

Notifications of cancer are based on initial diagnosis of the cancer, often from pathology laboratories.

There may or may not be a hospital admission or nursing home notification of the person suffering from the cancer.

Further notifications are received from hospitals when a cancer patient is treated and from the Registrar-General when a person is certified as suffering from cancer at death.

Occasionally advice of such a death is the only notification of a person to the QCR.
Number of cancer notifications.
Statutory requirements.
Annual.
National data available from the AIHW National Cancer Clearinghouse database.
Relational Attributes
Related Metadata References

Related Metadata References_IR

  • 1 - 1
ViewRelationshipMetadata Item TypeMetadata Item SubtypeNameIdentifier & VersionApproval Status
SupersedesInformation AssetData CollectionQueensland Cancer Register (QCR) Data CollectionQH 020002 Version 2Current
Implementation in Metadata Sets

Implemented

No Metadata Items
Included Data Elements and Performance Indicators

Included DE

  • 1 - 27
ViewMetadata Item TypeMetadata Item SubtypeNameIdentifer & VersionObligationApproval StatusEffective FromEffective To
Data ElementData ElementDate-estimated date of diagnosis indicatorQH 043129 Version 1ConditionalDraft01-Jul-2021
Data ElementData ElementEpisode of admitted patient care-admission dateQH 040008 Version 2Current01-Jul-2021
Data ElementData ElementEpisode of admitted patient care-mode of separationQH 040119 Version 9MandatoryCurrent01-Jul-2021
Data ElementData ElementEpisode of admitted patient care-separation dateQH 040117 Version 3MandatoryCurrent01-Jul-2021
Data ElementData ElementEpisode of care-facility referred/transferred to, codeQH 040120 Version 4ConditionalCurrent01-Jul-2021
Data ElementData ElementEpisode of care-person episode numberQH 040007 Version 2Current01-Jul-2021
Data ElementData ElementFacility-facility codeQH 040006 Version 2MandatoryCurrent01-Jul-2021
Data ElementData ElementFacility-facility typeQH 040263 Version 14MandatoryCurrent01-Jul-202128-Feb-2023
Data ElementData ElementHospital service-care typeQH 040013 Version 9MandatoryCurrent01-Jul-2021
Data ElementData ElementPatient identifierQH 042423 Version 1MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson (address)-Australian postcode of usual residenceQH 040081 Version 4MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson (address)-Australian state/territory of usual residenceQH 040078 Version 3MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson (address)-address of usual residenceQH 040079 Version 2Current01-Jul-2021
Data ElementData ElementPerson (address)-suburb/town/locality of usual residenceQH 040080 Version 2Current01-Jul-2021
Data ElementData ElementPerson (death record)-facility name or street address of death (RBDM)QH 040689 Version 2Draft01-Jul-2021
Data ElementData ElementPerson (name)-family nameQH 040002 Version 5MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson (name)-given nameQH 040003 Version 6Current18-Jul-2023
Data ElementData ElementPerson (name)-given nameQH 040003 Version 5Superseded01-Jul-202117-Jul-2023
Data ElementData ElementPerson-Indigenous statusQH 040290 Version 6Current01-Jul-2021
Data ElementData ElementPerson-Medicare card numberQH 040164 Version 3ConditionalCurrent01-Jul-2021
Data ElementDerived Data ElementPerson-area of usual residence, statistical area level 2 (SA2) identifier (ASGS 2016)QH 041598 Version 3MandatoryCurrent01-Jul-202130-Jun-2022
Data ElementData ElementPerson-country of birth (SACC 2016, v2.2.1)QH 040161 Version 10MandatoryCurrent01-Jul-202130-Jun-2023
Data ElementData ElementPerson-date of birthQH 040163 Version 4MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson-marital status (reporting)QH 042976 Version 1MandatoryCurrent01-Jul-2021
Data ElementData ElementPerson-sex (code)QH 040000 Version 6Current17-May-2022
Data ElementData ElementPerson-sex (code)QH 040000 Version 5Superseded01-Jul-202116-May-2022
Data ElementData ElementRecord (death)-death registration number (RBDM)QH 040691 Version 2Draft01-Jul-2021
Source and Reference Attributes
Cancer; QCR; Tumour;